(posted on the Thyca Support Group)
I just got back from a follow-up ultrasound with my endo. My Tg at my last bloodwork a couple of weeks ago was 1.4, and she wasn't happy about that, so ordered the u/s. I've been noticing more trouble swallowing lately but was hoping it was scar tissue.
Apparently there are a lot of nodes and they are pretty sizeable. I have copies of the u/s films giving measurements for 5 different nodes along the right cervical chain. One was big enough that she decided to do an FNA on the spot.
So she's sending me to MD Anderson Cancer Center in Houston for evaluation and treatment. She said that at 3 months post RAI, there was still too much going on in there. I know that RAI continues to work for 6 months and sometimes even longer, but I didn't argue with her.
If anyone has any advice on retrieving rugs that have been pulled out from under you, I'd appreciate it. I was just starting to get into a groove here, getting a good routine going with the kids and arranging things so I could start swimming myself. I'm going to try to hang onto it as long as I can, but if I'm going to TX for God-only-knows-how-long, and having the most horrific surgery imaginable, it's going to be hard to keep it up.
This is so NOT FAIR to my family. Why should they have to put up with this? Why can't we just be normal?
All my (short-term) hopes are now dashed. I'm cycling between fear, sadness, and anger, having just hit the "pissed off" stage while typing that last paragraph. I have no idea how it's all going to work, or what the timing of anything will be. This is not exactly the kind of news you want to hear any time, but it totally sucks being put into the referral loop the day before a long weekend starts. That means literally nothing can happen for the next 3 days.
I can't do a thing until I hear from someone who tells me what I need to do. So I guess I will try not to obsess (ha) and relax while I can. Meanwhile: