My MRI came back clean, and there's no need for any follow-up testing until my next ultrasound, which I think will be in June or July, and we'll do the Thyrogen trial again in a year and see what's what. Yes, my tumor marker is creeping up, and perhaps eventually we'll find something operable, but until then, there's no point in worrying or holding my life hostage to what could be.
Mom's tests all came back great, too -- no blockages, no new medications needed. She had really low blood sugar and few other minor things going on which conceivably could combine to cause her loss of speech. She needs to start taking iron and eat more protein, but other than that, she's doing great.
Last but most unexpectedly, I had a performance review in which I wrangled 4 extra points out of my principal. That doesn't sound like much, but each additional point represents a significant victory on a different performance metric. We're evaluated using a 21-metric rubric. My overall score still looks horrendous because of how they weight the scores, but I'll take it.
Wednesday, February 20, 2013
Thursday, February 14, 2013
sweet
On this Valentine's Day, I was surprised by gifts from three different students, I'm relieved that my Mom is home, and I'm glad my MRI is over.
We had a great family dinner (surf & turf -- belated birthday lobster for DS2, shrimp for the rest of us) and just enjoyed each other's company. I remember so well the days I wondered if a day like this would ever happen -- I'd cook and no one would eat more than 2 bites. Those days are long gone.
DH brought home a huge heart-shaped box of chocolates and some flowers... so unnecessary, yeah, but so sweet, since they're my favorite flowers (alstromeria) and the kids will definitely help eat those chocolates.
It really felt like a little holiday, here in the middle of this crazy week, and that's very sweet indeed.
We had a great family dinner (surf & turf -- belated birthday lobster for DS2, shrimp for the rest of us) and just enjoyed each other's company. I remember so well the days I wondered if a day like this would ever happen -- I'd cook and no one would eat more than 2 bites. Those days are long gone.
DH brought home a huge heart-shaped box of chocolates and some flowers... so unnecessary, yeah, but so sweet, since they're my favorite flowers (alstromeria) and the kids will definitely help eat those chocolates.
It really felt like a little holiday, here in the middle of this crazy week, and that's very sweet indeed.
Tuesday, February 12, 2013
stories we tell ourselves
Last post I laid out a scenario just to give myself something to measure reality against. Now it's Tuesday more than a week later. I'm having my MRI tomorrow, finally -- the original order never made it over to the imaging facility, so I had to call yesterday. The scheduler was really great about getting me scheduled quickly, too: tomorrow afternoon, without and with contrast. I don't know that I've done that before.
The interminable hold recording flaunts the facility's state-of-the-art equipment that is supposed to be both faster and more accurate. I hope it is less jump-out-of-your-skin startling, that would help. We'll see.
Another deviation from the expected: I have no follow-up appointment. My endo will call me when she gets the results and let me know what she wants me to do from there. I appreciate not having to spend another $50 co-pay just to get the results.
The problem with my little story is that the only person in it was me. Yesterday I called my Mom at lunch time to tell her about my MRI appointment, and her speech was garbled and incoherent, like she was speaking a made-up language or talking backwards. My sister was with her but it took some convincing to get her to the ER. She's home now, but in the intervening 36 hours she's had a multitude of tests and my other sister had to deal with the mountain of snow the town plowed in front of Mom's driveway, as well as the skating rink that her front yard had become. Fortunately Falmouth's weather has been warm during the day lately so some of Nemo's snow is melting off.
Today we celebrated DS2's birthday, since tomorrow is Ash Wednesday, and he has soccer practice and piano lessons as well. There's just too much going on and besides, DH and I will fast even though the kids are not yet obligated to. Fast days aren't good for birthday parties, so we had a little Mardi Gras of our own. It was a good dinner but a complex one, followed by his favorite brownies with vanilla glaze for his birthday "cake."
I feel sad but I'm wondering how much of that is actually just fatigue. School's going OK, but I have to get back on top of my grading. I miss my family and I worry about my Mom. I'm nervous about the MRI itself and scared of the results. I'm pretty sure when I had my recurrence my Tg was lower than it is now, but I'm not inspired to look it up. I'll know by the end of next week anyway.
The interminable hold recording flaunts the facility's state-of-the-art equipment that is supposed to be both faster and more accurate. I hope it is less jump-out-of-your-skin startling, that would help. We'll see.
Another deviation from the expected: I have no follow-up appointment. My endo will call me when she gets the results and let me know what she wants me to do from there. I appreciate not having to spend another $50 co-pay just to get the results.
The problem with my little story is that the only person in it was me. Yesterday I called my Mom at lunch time to tell her about my MRI appointment, and her speech was garbled and incoherent, like she was speaking a made-up language or talking backwards. My sister was with her but it took some convincing to get her to the ER. She's home now, but in the intervening 36 hours she's had a multitude of tests and my other sister had to deal with the mountain of snow the town plowed in front of Mom's driveway, as well as the skating rink that her front yard had become. Fortunately Falmouth's weather has been warm during the day lately so some of Nemo's snow is melting off.
Today we celebrated DS2's birthday, since tomorrow is Ash Wednesday, and he has soccer practice and piano lessons as well. There's just too much going on and besides, DH and I will fast even though the kids are not yet obligated to. Fast days aren't good for birthday parties, so we had a little Mardi Gras of our own. It was a good dinner but a complex one, followed by his favorite brownies with vanilla glaze for his birthday "cake."
I feel sad but I'm wondering how much of that is actually just fatigue. School's going OK, but I have to get back on top of my grading. I miss my family and I worry about my Mom. I'm nervous about the MRI itself and scared of the results. I'm pretty sure when I had my recurrence my Tg was lower than it is now, but I'm not inspired to look it up. I'll know by the end of next week anyway.
Sunday, February 03, 2013
this is what's going to happen
Some day this week, I'll get a call saying that my insurance company has authorized the MRI. I will call and schedule the MRI for later this week or early next week, and I'll make a follow-up appointment with my doctor for a week later.
I will get the MRI. I will be cold and nervous and trying not to flinch too much when the loud noises start. I will keep my eyes closed and focus on my breathing and relaxing my shoulders. It will seem like it's taking forever and then it will be over.
A week later I'll see my doctor for the results.
So that's about two weeks of uncertainty. I can handle that.
I will get the MRI. I will be cold and nervous and trying not to flinch too much when the loud noises start. I will keep my eyes closed and focus on my breathing and relaxing my shoulders. It will seem like it's taking forever and then it will be over.
A week later I'll see my doctor for the results.
So that's about two weeks of uncertainty. I can handle that.
Saturday, February 02, 2013
OK
Well, at least the weirdness at work has settled.
There's no way to go into any kind of detail without stepping on someone's privacy, so I won't.
I can say that, prior to today, I felt unsure of how my administrators viewed me. I had the distinctly unpleasant experience today of sitting in a meeting listening to someone outright lying about me. It was unsettling and I remained unsettled until the end of the day when a smaller, second meeting clarified that no one believes those lies and I have nothing to worry about.
It felt like someone flipped a switch, and I went from not OK to OK in the time it takes to exhale. It's always good to know that your boss will stand up for you.
There's no way to go into any kind of detail without stepping on someone's privacy, so I won't.
I can say that, prior to today, I felt unsure of how my administrators viewed me. I had the distinctly unpleasant experience today of sitting in a meeting listening to someone outright lying about me. It was unsettling and I remained unsettled until the end of the day when a smaller, second meeting clarified that no one believes those lies and I have nothing to worry about.
It felt like someone flipped a switch, and I went from not OK to OK in the time it takes to exhale. It's always good to know that your boss will stand up for you.
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